About
Chronic, progressive genetic disease characterized by abnormal involuntary movements and dementia.
Assess
Abnormal body movements, emotional disturbances, dementia, decreasing intellectual functioning, impaired swallowing, abnormal gait, incontinence, personality changes, psychosis
Complications
Heart failure, infection, injury, choking, death
Diagnosis
- Chronic confusion related to dementia
- Self care deficit related to physiological or psychological impairment
- Fear related to chronic progressive illness
- Risk for injury related to immobility.
- Immobility related to neurological impairment.
- Bowel incontinence related to neurological decline.
- Urinary incontinence related to neurological decline.
Goals
- The client will be free from injuries.
- The client will utilize adaptive techniques, as indicated, to improve mobility, speech, and participation in ADL's.
- The client will discuss concerns and fears related to treatment and disease process.
- The client will participate with ADL's as much as able.
Interventions
- Monitor for signs/ symptoms of complications.
- Monitor orientation, mobility status, alertness, communication.
- Monitor swallowing, continence status.
- Reposition client every two hours.
- Initiate injury prevention strategies ( call light within reach, aspiration precautions, etc.).
- Assist with meals, noting difficulty with swallowing.
- Initiate bowel and bladder retraining or monitor for incontinence frequently.
- Encourage active participation in rehabilitative activities to restore or adapt to decreased levels of functioning.
- Re-orient to person, place, and time.
- Teach the client and family members about the disease, progression, and goals of therapy.
- Teach the family how to care for client in latter stages of disease, including 24 hour supervision and maintaining a safe environment.
- Encourage family to verbalize concerns, fears and encourage support programs.
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